heartsongs

Weaving my way around Rheumatoid Arthritis.

A New Beginning

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Over a year has passed since I blogged. Much has happened, much has stayed the same.

I had a horrible rash in January, which resulted in 5 days of bed rest on mega dose of prednisone. I gained 12 pounds, which I have yet to lose. We think the rash was related to the emu oil in the LDN. I stopped the LDN and all other drugs and supplements for 5 months, but eventually had to go back on levothyroxine.

The builders completed the bones of my studio in December; my wonderful family completed the interior, the soul. I moved into the space in February, 2014. I have always had a corner or a closet or a box somewhere in my home for my art; now I have a wonderful space that is all my own, and as a result my first gallery show is up at the O’More School of Design, in Franklin, TN.

I took a round of FMT pills, my Celiac symptoms have been milder since. The skin on my hands is about 90% better – maybe from the FMT, maybe from switching to nitrile gloves and eliminating latex reactive foods from my diet. May need to get tested for a latex allergy.

My lovely daughter was married in May, 2014. It took the whole tribe, friends and family, to choreograph this gluten free/egg free wedding on a shoe string budget. Housing a half dozen wedding guests and feeding 25 friends and family for 4 days, in addition to catering the rehearsal dinner and sit down wedding feast for 100 was an amazing feat. My daughter is very loved.

I had my first brush with cancer, a keratoacanthoma on my forearm. If one must have cancer, this is a very good one to have. It rarely metastasizes or invades. Treatment is removal. Very non-eventful.

The chickens are thriving, the cats purring, the parrot squawking, the garden suffered from wedding neglect, I survived the wedding extravaganza in spite of the RA.

Bursitis in my hip cause a month of limping, and took 7 months of PT to rehab.

My RA doc gave me the highest complement, saying she had learned so much from me!

My friend and fellow weaver lived with Leukemia for 5 months, and then passed away easily and peacefully in her home. She was only 61, and planning to retire on her 62 birthday. She left a large hole in my heart and life.

My very best friend has suffered with his own health demons for almost a year.

My PCP left the field of primary care to enter the mental health field. I may need her services because I’m going crazy trying to find a new PCP.

Tomorrow, I start the Auto Immune Protocol of the Paleo Diet. I am determined to find a way to heal my body from the Celiac Disease, the Hashimoto’s and the RA. I am so much better than 5 years ago, I’ve come far, now I want to finish the journey and become a healthy person.

2/28/2015

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Written by wovensongs

February 21, 2015 at 11:46 am

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